Better outcomes for all special needs kids

Your kids.

My kids.

All special needs kids.

You know something is wrong. Everything is a battle. No one gives you a straight answer. You find out more from other parents than you do from your school, insurance company, or social worker. Yes, you can succeed, but you spend your time fighting systems instead of (just) struggling a good parent to your special needs child, pay enough attention to your non-special needs kid(s), and try to keep your adult relationships healthy and going.

And, when you step back (on those rare days you have a chance), you see that every other special needs family is in the same boat.

Your kids deserve better.

You deserve better.

It is time for a change.

It is time for a change

At first, we thought this was going to be a parents group. Learn. Share.

But that isn’t enough.

The systems that are supposed to support our kids, all special needs kids, instead spend their time and energy finding ways to say “No”…. or giving us just enough “services” so that we’ll be quiet and go away..

You know your kid can do better.

They just need a chance.

  • A real education – not a meaningless certificate.
  • Real services – not simply hours per week, but a plan to build their skills, grow their strengths, and work with their limitations.
  • Real inclusion – none of us want our kid to be isolated. We know they have potential in society. We’re ready to do our part, but we’ve got to change attitudes.

Political and Systems Change

Snkids.org is organized as a 501c4.

We can and will lobby for change. Endorse candidates. Lobby for new laws, bigger budgets and better regulation.

No more hiding. No more hoping.

It is time to act.

It is time to be loud.

Our kids have been hidden in attics and ridden on a separate and unequal short bus for long enough.

With your help, we will hold our public, community and business leaders and organizations accountable.

This is big

Yes, we can each fight it out. We can get more services through our schools or state. We can go to legal conferences. We can tweak our IEPs. We can battle insurance companies.

But that doesn’t change attitudes.

That doesn’t change the future where our kids will grow up and we won’t be there to fight for them.

SNPride -Fighting Stigma

The biggest and hardest challenge we face is to help everyone see what we see.

Our kids are wonderful.
Our kids are worthwhile.
Our kids have a lot to offer all of us.

We have to change minds, not just change laws. We have to fight the stigma that implies that our kids are somehow broken or defective.

They have a disability… they aren’t their disability.

Snkids.org is first focus is on SNPride:

Special needs kids are real people with real minds and real souls. They deserve respect, opportunity, and community…. all else follows.

 

Changing systems

Equal opportunity.

A fighting chance.

That is what we want for our kids – for all special needs kids.

Unfortunately, the systems that were created to give them that chance have never been properly funded. They’ve been starved and changed from service providers to scrooges.

Big changes are needed.

When we are more willing to spend money putting special needs kids into prisons than give them the education and life skills they need to live full and independent lives as citizens, things have gotten off track.

We have come a long way from locking special needs kids away in institutions or attics, but we have a long way to go to make a welcoming, inclusive society that we all deserve.

Snkids.org is fighting to change the laws, regulations, and budgets that affect the lives of all special needs kids and adults.

We are just at the beginning of this. We see the problem. It is huge. It is scary. It is going to take time, money, and a lot of work to change things.

But our kids are worth it.

Smarter today, better tomorrow

We can’t wait.

We can’t wait for society to be more welcoming for all special needs kids.

We can’t wait for adequate budgets, strong leadership, and an inclusive vision of a future that welcomes special needs kids and adults into our society.

You need help today.

Who can help you

There are great advocates. There are great parents groups. There even great lawyers. There are great service providers.

… and there are those who aren’t as good.

  • Instead of searching the Internet or asking your fellow parents over coffee, please share their names with us so we can share them with you!

How does the special needs world work (today)

We are working to pull together the information on how the current systems work (school, state services, insurance, etc.) so you know what is available, what your rights are, and what your options are. Real answers, not rumors.

Know what you need to know. Give you answers so you can ask better questions. We can’t begin to change the system today until we really understand how it works.

Ending “Don’t Tell, Don’t Ask”

You are your child’s best advocate

It almost sounds like an accusation sometimes.

Yes, you may be the person most passionate about doing the best for your child…

… but you sure don’t have the knowledge to argue with the “experts”.

Doctors, teachers, psychologists, therapists… they all tell you what should be done for your child, but they rarely tell you what the other options are.

You can’t be a good advocate if you don’t even know what questions to ask.

… and you don’t have the time to become an expert.

… and you don’t really want to spend your evenings and weekends going to meetings and conferences.

What you need are guides to help you be more effective….

… and a community to ask questions when you run into a roadblock.

Snkids.org’s ongoing project is to give you the facts, guides, and tools you need so that you can focus on being a good parent for your special needs kid… and a community to support you.

Anything else?

Our goal is to help. Tell us what you think. Tell us what you need…. we’ll do our best or try to connect you with the people or groups who can help you better.

Join Today – membership levels and benefits

We need your help.

Better outcomes for all special needs kids is our motto, but it is a call to action.

Join us today.

Our kids can’t afford to wait.

Your membership contribution will help us advocate for system and political change. Where possible, we’ll make all of our resources and events available for free to help all special needs kids.

Individual – $35 per year

  • Access to all our online resources, articles, and guides.
  • Advance notification of our events and actions.
  • snkids.org eNewsletter with special education policy updates & other important information about our work

Membership Levels

Family – $50 per year

  • Access to all our online resources, articles, and guides.
  • Advance notification of our events and actions.
  • snkids.org eNewsletter with special education policy updates & other important information about our work.

Membership Levels

 Professional – $100 per year

  • Access to all our online resources, articles, and guides.
  • Advance notification of our events and actions.
  • (Optional) basic listing in snkids.org directory.
  • snkids.org eNewsletter with special education policy updates & other important information about our work.

Membership Level

Leadership Circle / Organizations* – $250 per year

  • Access to all our online resources, articles, and guides.
  • Advance notification of our events and actions.
  • (Optional) full listing in snkids.org directory (logo, full contact information, short summary)
  • snkids.org eNewsletter with special education policy updates & other important information about our work.
  • Contact us for discounts for small parent groups and nonprofits

Membership Level

Additional donations toward our Legislative Advocacy

… contact us – email steve@snkids.org .

Join today!   snkids.org is a California nonprofit mutual benefit corporation, with a pending application for IRS tax exempt status under IRC Section 501(c)(4) (filed – April 23, 2018).

  • A 501c4 nonprofit status allows us to engage in political lobbying, candidate endorsements and policy/systems improvement efforts.
  • We think education is not enough.
  • Lobbying. Endorsements. Holding leaders and organizations accountable is the only way we are going to make change happen for all our special needs kids.
  • There is a cost for changing the system.
  • Your donations are not tax exempt …. but they are needed